To all of you who know someone who is fighting this dreadful disease, know someone who has passed on, or may even be fighting this battle yourself... I hope you find some comfort here at this site, whether it be an article, a link, or even a picture. My heart is with you, for I have lost my dear sister Janel who was only 42 at her passing October 26th, 2009. This young woman never drank alcohol or smoked a day in her life. She was a third degree brown belt in karate and only lived for three days following her diagnosis. I encourage everyone to support research and funding for this silent killer.

Showing posts with label encouraging words. Show all posts
Showing posts with label encouraging words. Show all posts

Monday, March 5, 2012

What do you say to someone who is dying?

Talking to someone who is dying can be very uncomfortable. It can be so uncomfortable people often avoid, or want to avoid, visiting or talking with a dying person. People often state they “just don’t know what to say.”

It is understandable we are at a loss for words around someone who is dying. We never wrote essays in school about talking to a dying person and dinner conversations don’t routinely cover this subject. It is especially difficult to find words when we are experiencing intense feelings of sadness and impending loss. We may only see their failing body, declining health, and vanishing spirit while losing sight of the fact a dying person is more than their death. Finding words in this painful situation necessitates a broader perspective than the moment we are in.

At any point in time a human being is a composite of their past, present and future.

Relating to people successfully includes referencing all three of these dimensions.

When we say “hello” to someone who is dying we need to be thinking about the person they were, the person they are, and the person they will become. When we ask “How are you?” we need to really mean it and not accept “fine” or “OK” as an answer. We need to say “No, I mean how are you really.” Then we need to listen and listen well, because talking with someone who is dying is as much about listening as it is about words.

We may not know much about the particulars a dying person shares such as diagnoses or tests or treatments. But we all know about pain, frustration, sadness, and loss. These feelings are not situation specific and we can say “I am so sorry you have to experience these things today.” Empathizing with someone who is dying is a powerful way to be with them. Even the dying person can only spend so much time with their decline and will need to move on.

You can say “I remember when things were different. Do you remember when we went fishing in that snowstorm?” or bring up some time in the past you were together. This can often be a comfortable time talking about your shared past and exchanging familiar remembrances that connect you in the world of memories. Talking about past experiences reminds everyone that the dying person’s life is more than what it is today.

When reminiscing is ending you can talk about tomorrow by asking “What will your tomorrow be like?” This question may take you into current events or it may take you into the final chapter of a life. When a dying person talks about “just waiting to go” you may squirm and say “I hate to hear you say that, my world will be different without you.” Tears and hugs and hand holding are meaningful because sharing emotions and touch are another powerful way to be with someone.

Ending a conversation or visit with a dying person can be hard. You can say “I have to go now, I have enjoyed talking with you, I am thinking about you.” You may be overwhelmed with lots of other thoughts and emotions, but know you have made a positive difference by spending time with someone and their past, present, and future. And when the dying person can no longer talk, you can still communicate with them by sitting quietly at their side in silence, remembering their life is so much more than this moment.

Thursday, April 14, 2011

Go in peace: rituals for the dying.

JOYCE RUPP, O.S.M. is a spiritual director, retreat and conference speaker, and author of many books, including Praying Our Goodbyes (Ave Maria, 1988), Your Sorrow Is My Sorrow (Crossroad, 1999), and Walk in a Relaxed Manner (Orbis, 2005).

Much has been written about death and dying, particularly the stages of the process, including the physical, mental, and emotional responses accompanying end-of-life issues. There is much less information about how to attend spiritually to those entering the last days and hours of earthly life. How can we pray with the dying in a way that is supportive, caring, and respectful? How can we temporarily forgo the ache in our hearts as we focus on being a loving presence for them? Rituals can be a valuable source of support for the dying, but traditional church rituals are limited and those we do have often lack sufficient help for this significant transition.

I discovered the meagerness of these rituals on the day a dear friend died. That morning the nearness of impending death whispered in every corner of her house. Friends and family came and went in the crowded living room. They stood by the hospital bed, attempting to say farewell to the beloved woman in a semi-coma. As they did so, my heart felt the heaviness of each one's sorrow.

In that grief-laden atmosphere, my friend's sister-in-law approached me and whispered, "We ought to gather tonight and do some sort of ritual for Joan." I readily agreed, knowing how inept we all felt about telling her "goodbye." I agreed to plan a prayer service for that evening.

A combination of panic and dread collided in me as I drove home. My mind briefly reviewed the traditional rituals of the Roman Catholic Church. There was the Sacrament of the Anointing of the Sick, but this is usually given weeks or months preceding death. Even when the anointing is near the time of death, the sacrament is only allowed to be administered by a priest. Besides the fact I am not ordained, this ritual allows only minimal participation for those present (mainly observation and some brief responses to the prayers).

Non-ordained chaplains sometimes bless the dying with holy water, making the sign of the cross on the head, the mouth, the heart, the hands, and the feet. Other chaplains pray the litany of the saints. One hospital chaplain encourages those at the bedside of the dying to create their own litany by naming deceased family members and friends. In doing so, they are reminded that the one dying will soon be welcomed home by those who have gone before him or her. The rosary was another option that I knew to be of comfort to the dying.

Each of these Catholic rituals has value but none of them seemed to be what Joan and her family needed. Her loved ones needed a prayerful experience that would provide support and strength to Joan as she slowly slipped away, while also encouraging their own ability to peacefully let go of her.

To each his own
Knowing how to pray with others when death nears is difficult because what gives comfort and ease to one dying person can cause anxiety and unease for another. Such was the case when a beloved pastor of mine was dying. Although he was conscious, he could neither see nor speak. One of his priest friends and I stayed the night with him. At a moment when it appeared he was close to his last breath, his friend and I began singing church songs such as "Be Not Afraid" and "On Eagle's Wings."

As I gazed upon the pastor's face, I sensed the need for quiet, remembering what he had once told me about wanting silence in his house for his morning prayer. So I leaned down close to his ear and asked, "Would you like us to stop singing? If yes, squeeze my hand." His response, even in his weakened state, was to nearly squash my fingers!

Another time I was with a young man dying of AIDS who wanted the opposite of silence. He asked that classical music be played continually in his room during his final days. Because each person has his or her own needs when approaching death, we cannot presume that one or two church rituals will best assist every dying person.

Certainly what we do not want to do when we are at the bedside of the dying is to foist our own needs and beliefs onto the one who is departing. How unfair if we encroach on dying people's last moments, focusing on our own desires for consolation instead of centering on what will bring peace and serenity to them.

It helps greatly if those around the bedside know what the dying person appreciates about personal prayer. One family told me their father was completely inert and unresponsive as he lay dying. They decided to pray the Our Father because he always prayed it at home. As they began, he turned his head toward their voices and a faint smile appeared on his ashen face. The Our Father was obviously what resonated with him and brought consolation. They had chosen well.

Many times we do not know the patient's spirituality and can only guess at what he or she might need. No situation is ever the same. We learn as we observe and tend to the dying. We do the best we can, trusting our deepest intuition and our Spirit-connection to lead the way. I had been Joan's spiritual director for five years so I was familiar with how she prayed and what she valued but I knew of no satisfactory rituals I could use.

Silent presence
To calm my searching and clear my vision, I went for a walk in the woods. My feet plodded along while I struggled to think of something appropriate. I prayed intensely for guidance. Above me an owl with wide wings silently glided through the trees.

Then four deer stood not far from me, gazing with what seemed to be compassion in their eyes. Joan was passionate about nature and often found her comfort there. The sight of those creatures assured me I would find a ritual that would encourage her journey onward.

Memories of my time as a hospice volunteer surfaced. It was during my bedside times with the very ill that I discovered a new way to pray with them, a personal ritual allowing me to be present in a spiritual manner that was respectful of their own religion and way of praying.

As I sat in the presence of a hospice patient whose body was weakening, I sensed the soul expanding in freedom. It was as though the soul was "ripening," being readied for its journey onward, like an apple maturing toward its moment of departure from the tree. I saw myself as a privileged witness to this awesome event. Although I spoke very little, I did offer encouraging words, affirming the dying one's spiritual strength and ability to release the body's hold on life. Always I assured them they were not alone.

Occasionally I held a hand, touched an arm, swabbed dry lips with moisture, or placed a wet washcloth on a fevered head, but mostly my physical actions were few. It was my "inner action" that I consistently gave to the patient. I tried to be a peace-filled presence of compassionate love as I imagined Mary of Nazareth was with when he was dying on the cross. Very intently I continuously gathered the love of God in my heart and sent it to the dying person, surrounding him or her with as much compassionate courage and peace as possible.

While "sending love" may not seem like a ritual, it does have its elements of gesture (inward attentiveness) and repetition (intentional sending of love over and over). I never knew whether or not this inner ritual was of value until two days before a beloved cousin of mine died. On Saturday morning I sat in her hospital room as she lay sleeping and "sent love" to her. I left before she awoke and on Sunday when I returned she appeared more peaceful than usual. As I drew near her bed, she turned to me and said, "You were praying for me while I rested yesterday, weren't you?"

Blessing the body
For Joan, I trusted the benefits of my personal inner ritual but realized we needed a communal one, something external that everyone could participate in and that Joan could hear. Then I realized I had missed something essential:

I had discounted the body with so much focus on the soul.

The soul was ripening but so was her body as it weakened and prepared for its separation from the soul. Through Joan's 55 years of life her physical body had been her faithful companion and instrument for spiritual growth. Whatever ritual we prayed, her body would need to be included. Out of this realization, I created a prayer service with the central component being that of the blessing of loan's body.

That evening when family and friends gathered around the hospital bed we knew we were standing at the threshold of a powerful moment for our loved one. Joan barely moved. Her breathing was shallow and her body calm. As we began the ritual, I invited everyone to remember the presence of the Holy One in our midst. We needed this to give us hope and strength. We listened as some of Joan's favorite poems by Mary Oliver were read. Next I explained how we were going to bless and thank Joan's body for what it had done for her and for us.

We spoke directly to Joan as we blessed the various parts of her body (head, eyes, ears, hands, etc.). We recalled what her body had done for her and thanked her for how she had used that part of her body in some way as a gift to us.

For example, when I prayed a blessing for her head (the dwelling place of her brain and mind), several persons standing nearby placed their hands on her head. I mentioned how she influenced our lives by her beliefs, attitudes, and values, and thanked her for sharing her dreams and hopes with us. Then those around the bedside added personal ways her head had helped them. After each part of her body was blessed, the group spoke together to Joan: "You will always be a part of our hearts. Go in peace." We continued in a similar manner for the rest of her body.

Throughout the ritual, Joan's 80-year-old mother gently held her daughter's bare feet in her hands while loan's husband bent close by her side. When it came time to bless her womb in gratitude for the wonderful life it had carried within it, her two young-adult sons knelt down and put their heads on her stomach and cried, "Thank you, Mom! Thank you!"

During the entire blessing I stood at the back of the bed. We completed the farewell ritual by listening to a musical rendition of the Our Father that Joan had included in her funeral plans.

I'll never forget what happened after the music stopped. Throughout the blessing she had been silent and seemingly unaware of our presence. To our amazement, after the closing song she slowly raised her right arm and extended it backward toward me for a brief moment. Then the arm flopped down limply on the bed. Joan had heard everything and was trying to express her gratitude!

Healing at the end
Since that time, I have used the blessing in similar situations and have shared it with others who have waited with the dying. People continually assure me that it provides both their loved one and themselves with the surrender and peace they need.

A chaplain recently told me of a woman who clung to her husband's body after he died and could not bear to leave him. As she tried to console her, the chaplain remembered the blessing of the body. When the ritual was completed, the widow turned and whispered, "Now I can leave."

Another chaplain recently described how she was in the intensive care unit ministering to a family with hostile emotions toward one another. Some had not spoken to each other for years. They stood or sat silently in far corners from one another as they waited to hear the surgeon's prognosis. Eventually they learned their loved one was not going to live.

When the family was able to enter the ICU room to say their goodbyes, the chaplain invited them to join her in the same ritual I used with Joan. The chaplain said it was like a miracle. By the time the ritual was completed, the family began to speak to one another, then to hug each other and to cry. The ritual helped them release their old wounds. In expressing gratitude to their family member and encouraging him to go in peace, they rediscovered a center of love that united them again.

Death is a momentous journey that each of us will one day take. I hope we will have what we need spiritually in our final days and hours. Let us urge those in pastoral ministry and chaplaincy to create meaningful rituals for end-of-life situations. Let us search for prayerful ways to assist patients, and those who are with them, to say goodbye in a comforting way. What a magnificent gift for the dying if our church could be a catalyst of compassion and consolation for the great transition from this life to the Beyond.

Monday, March 7, 2011

When You Feel Sad

When You Feel Sad
by James E. Miller

Your sadness is real, yet it need not be final.
You have known deep joy before;
        you can yet again.
And while your despair brings you pain,
        it can also bring you wisdom and strength.
From it you will learn secrets about yourself,
        and truths about others.
Through it you will experience the blessings of healing,
        and the mysteries of life.
So listen to your despair
        and allow it to lead you to greater fullness.
And always remember: you are not alone.
You are loved, whatever happens.
You have significance, whatever befalls.
For you are an unrepeatable act in God’s grand creation.
You are irreplaceable.
At this moment, your journey in life
        is requiring of you great courage, often unseen by others.
Be strong in your persistence.
Be supple in your patience.
And know: despite your brokenness,
       and somehow even because of it,
       wholeness awaits you.
Despite what you have lost,
      and somehow even because of it,
        you stand to gain.
You hold the possibility of experiencing life
      with a maturity, and a compassion, and an appreciation
        you have never known before.
So be open.
Know that the life which flows through you
        has been given you as a sacred gift.
Cherish that gift.
Nurture it.
Above all else, hallow the preciousness
       of each passing moment that is yours,
       for this is where the miracle of life resides,
       and this is where you must go to find it.
Finally, remember that your destiny was predicted
       by the writer of the Book of Job:
"You will forget your misery,
you will remember it as waters that have passed away.
And your life will be brighter than the noonday;
its darkness will be like the morning.
And you will have confidence,

because there is hope."

 
This excerpt is from the conclusion to the Willowgreen videotape Listen to Your Sadness: Finding Hope Again After Despair Invades Your Life by James E. Miller.

Sunday, December 12, 2010

Ideas for a Time When Someone You Love Is Dying


     Someone you love is dying. Someone who has been as lively as you, is now losing their liveliness, or they're about to. It hardly seems possible. More than that, it hurts. It hurts to see them go through what they're going through. It hurts that you cannot protect them, that you cannot change their outcome. It hurts to feel all that you feel. It hurts to realize this is not the only death you'll ever face.
     Someone you love is dying and it feels as if a part of you is dying too. It's not easy to think about what all this means. What will life be like without them? What will happen to you in the future? What will become of your relationship? Those are only some of your questions. You're probably also wondering about this period just ahead of you. What will you say to that person? What will you talk about? What should you not talk about? How should you act? What can you do that will best help them? And how can you best help yourself?
     I've written this to assist you in finding the answers you seek. I've made a few assumptions along the way. I've assumed you're close to the one who's dying--they're your spouse or lover, your parent or sibling or child, your close friend or trusted colleague. If your relationship is more distant, some of the specific ideas presented here may not ring true for you. I believe the basic twelve principles, however, are universal.
This will be a time of testing unlike any you've known. It can be extremely stressful when someone you love is dying. Depending on who they are, who you are, and what the situation is, the stress can seem overwhelming. Not only are you about to lose an important relationship, but you're probably being forced to make major changes in your life. Change does not come easy. Unwanted change is even harder to accept. And a change which threatens your sense of well-being is the most difficult of all. It would not be surprising, then, if this were one of the most stress-filled times you've ever known.
In addition to dealing with all your emotions, you may be facing a host of disruptions in your daily life. You may be responsible for extensive caregiving duties, either ones you've chosen or ones you've been handed. Doctor appointments, lab tests, hospital visits, and medical emergencies may devour your time. Day-to-day caregiving rituals may consume your thoughts and sap your energy. Financial matters may burden you or even frighten you. Decisions about the future may hang heavy.
     Other responsibilities also vie for your attention. You may have a career to juggle, other loved ones to watch over, important commitments to fulfill. Your family life may be altered, if not fractured. You'll probably have less leisure time, less personal privacy. Friends may pull back from you out of their discomfort of not knowing what to say or do.
     What is happening to the one you love may cause you pain. Their disease may make them uncomfortable. Their treatments may make them sick. Their dying may make them very sad. You may witness changes in them that are hard to accept, or you may experience changes in your relationship that concern you, or hurt you, or mystify you.
It's no wonder that caring for someone who's dying is one of the most stress-producing jobs there is, even for people who are trained in this work. And if it so easily affects those with experience and expertise, why should it not affect you? You're new at this. And this is not just a patient you're dealing with--it's someone who has worked their way into your heart.
     Your situation should not be downplayed. But neither should it be painted as impossible. Others have done what you are now called upon to do--many others. And while you may wonder if you have what it takes to do what you must do, those who have done this before you have left a message: "It's hard, but you can do it."
     Three suggestions may help you through this time.  Learn all you can. Find out about your loved one's disease, prognosis, and treatment. Learn how to provide care, manage stress, and develop efficiency. Ask questions, read articles and books, network with others. The more you know about what you're facing, the better you can face it.
Go easy on yourself. Give yourself time to adjust to all the changes. Pace yourself daily. Be lenient in your self-expectations. The more accepting you are of yourself, the more tolerant you'll be of those around you, including the one who's so ill.
Don't forget: this is only temporary. It may seem that this crisis will never end, or that life will always be sad, or that you'll be forever hurt by what's happening. Such thoughts are understandable. But rest assured: the distress you feel will one day subside. Life's joy can return. You'll be shaped and changed by what you're going through, yet the changes don't have to be only negative. You can grow from this experience. You may not want to read that right now, but it's true.
     If nothing else, remember this: You've known times of testing before, and you've survived them. You can yet again. For the moment draw upon the strength and the example of those who have persevered before you. Take their words to heart: "Yes, it's hard, but you can do it. I know you can."
     The dying person will be as they've always been, only more so.
When someone is told they have only limited time to live, they respond in their own unique way. Some people become visibly upset and others appear stoic. Some act astonished and others take it in stride, as if they've known all along. There are no prescriptions for how people will react when they learn they're dying, but there are some general rules.
     As a rule, the kind of person they've been before is the kind of person they'll be now.
The fact that something has happened and someone is now dying does not change who they are. They do not automatically become wiser or kinder or braver. They simply become more themselves. Generally, if they were serious before, they'll be serious now. If they've been lighthearted, they'll probably still have a sparkle about them, at least some of the time. Quiet people will usually not talk a lot more, grouchy people will not complain much less, and affectionate people will not give up their loving ways.
What dying people may do is emphasize certain aspects of who they've been all along. Realizing this is a time unlike any other, and knowing it will not come again, they may concentrate on certain pursuits or call upon certain characteristics, letting others fall away. You may have the impression they're becoming more who they're meant to be.
As a rule, dying people prefer to live fully as long as they're able and to be treated as very much alive.
     There's a tendency to treat dying people differently. Voices are often lowered. People's faces may appear overly somber or they may take on a false cheeriness. Topics of conversation become more limited and some things are no longer talked about at all. As a result, the dying person may feel they're being pushed to one side, or they're being treated with pity, or they're being handled like a child.
     Not only is the dying person no different than they used to be, but in the most essential way, they are no different than you are today. They're your equal in every sense. They're as full of life as you are. They're every bit as human and maybe even more human. So they may bristle if you treat them as less than they are. They don't want your pity; they want your compassion. They don't want you to pat them on the head; they want you to go with them hand-in-hand just as far as you can.  As a rule, rules don't always hold.
     While most people don't experience personality conversions as they prepare to die, some do. Some decide to live the time that's left in radically different ways, and they give up old lifestyles for new ones. Some become obviously freer and others become clearly happier. Some grow up a great deal in a short period of time and a few, unlikely as it may seem, actually blossom. It happens.
     It will help everyone if you can go into this experience with as few preconceptions as possible about what dying people are like. Just expect the one you love to live as fully as they want for as long as they're able. Expect them to know joy as well as sorrow, to feel promise as well as pain, to laugh as well as cry. Expect them to teach you what you need to know. Mostly, just expect them to live until they die. Then let them do precisely that.
The one who's dying needs you to reach out.
     Those who know they're dying may hesitate to voice their deeper thoughts and feelings. They're often afraid of upsetting people around them. They're not sure how much others are ready for. It's not unusual for caregivers to behave similarly, tiptoeing carefully through conversations, steering clear of any topics that might seem disturbing. This can also be a way of protecting oneself. Whatever the reason, the result is the same: the dying person can come to feel isolated and lonely. So can you. But that doesn't have to be the case. You can reach out and connect.
     Connect by talking. Speak to the one you care for as an equal, person to person, face to face. Say what you think. Express what you feel. If the dying person is slow to open up, don't push them. Just let them know you're ready to move to a deeper level whenever they are. If tears come, let them to be. They're a sign that you care, an indication you wish this wasn't happening. Would you want the one you're with to think otherwise? So be honest with them. Talk simply and straightforwardly. Avoid secrets. Speak when the time is right and stop when the moment has passed. Draw the other person out bit by bit. Allow yourself to be drawn out too. Make this a time when you truly meet.
     Connect by listening. The one who's dying may have much to say--feelings to explore, questions to ask, ideas to leave behind, experiences to sum up. Your patient, attentive ear is one of the greatest gifts you can offer. Real listening takes work. The dying person's thoughts can be complicated and confusing as they spill out. Their emotions can be forceful and yet elusive. Answers may not be easy to come by. Yet you will perform a wonderful service by listening carefully to what the other person has to say, without interrupting, without judging, and without shying away. These can be sacred times you'll both remember long afterwards.
     Connect by encouraging memories. Often a dying person wants to make sense of the time they've had on earth. They want to feel their life has mattered and their influence will not be forgotten. You can play a critical role by treating their memories as important and their reflections on life as valuable. Leaf through scrapbooks and old letters with them. Look at pictures, sort through mementos, tell and re-tell meaningful stories. As you do this, you're each beginning to say your goodbyes. Saying them this way, gradually and lovingly, can help you both.
     Connect by touching. People who are dying want to know you're with them in as many ways as possible. No way is more direct than physical touch. If it's a comfort to them, hold their hand or touch their arm or shoulder or head. Stroke them, massage them, hug them. Your nonverbal communication can say as much as your verbal, or even more. Don't forget that touch and hearing are the two senses a person retains longest. Even when they cannot speak, they can be spoken to with a sound or a caress.
     Connect by just being present. Sometimes the most thoughtful way to reach out to a dying person is by not saying or doing anything. By your consistent return you communicate "I will not desert you." By sitting or working quietly in the same room with them, you communicate "I enjoy being with you." By staying beside them when they need you, your message is clear: "I am right here. I care."
     The one who is dying wants to know they're not alone. It's up to you to tell them in as many ways as you can.

By James E. Miller

Thursday, December 9, 2010

Hospice Article

Hospice
A Dying Person’s Guide To Dying by Roger C. Bone, M.D.
By thinking ahead about what could happen - and about how you will deal with problems if they do happen, you can create a better life and a better quality of life for yourself and for the people who love and care about you. What I have to say is for the person who, like myself, is dying. We, too, need to plan - to think ahead in order to fashion, out of the time remaining, the best of what is possible.
As I am dying from cancer, I have learned some things that I think are important for a dying person to know in order to plan. I am a physician, but what I have learned has little to do with my medical training. I have learned this as a person; perhaps my medical experience was helpful because I have paid close attention to the actions and reactions of people around me.
First, it is likely that you will be surrounded by persons who mean well but, in the end, you must die your own death. Dying can be considered a journey one takes alone with a crowd. Family and friends are the first to gather around you, and they offer the most comfort.
Here are some pieces of advice to remember in those first few days after you learn the bad news.
  1. One or two people - probably family members - will make enormous personal sacrifices to help you. If you are married, your spouse is likely to do this, but don’t be surprised if others - a daughter, a brother-in-law, or even a friend, step forward to offer extraordinary help. Be grateful, and accept help, from whatever source, graciously.
     
  2. Some family members, but especially friends, will treat you differently. Even before you show signs of serious illness, people will have a different look in their eyes as they talk with you. You might consider this patronizing or over bearing. It may be difficult, but it is best to ignore their attitudes and treat them as you always have. They will come around to their normal selves when they get over the shock.
     
  3. Happily accept all gifts from family and friends. It makes them feel better and you might receive something you really like and appreciate.
     
  4. Don’t be afraid to ask to be alone. We need time to be by ourselves. Some family and friends may feel driven to fill your every waking moment with activities; perhaps they are trying to “take your mind off” your impending death, but they may also be doing the same thing for themselves.
     
  5. Be your own counsel. No one, including your physician, religious counselor, spouse, or friends can understand 100% what you want and need. It surprised me that some people seemed to “bully” me with advice when they learned that I was terminally ill. We should remember Immanuel Kant’s advice to avoid accepting someone else’s authority in place of our own powers of reason. We are the ones who should be considering alternatives and making choices. We can, and should, ask for advice. Make telephone calls and read books - but ultimately, we should decide.
     
  6. Slow down and ask your family and friends to slow down. There may not be a lot of time, but there is sufficient time in all but the most extreme cases to think, plan, prepare.
     
There are things you need to know from your doctors and other health care staff. You need not ask all of the following questions or ask them in this order. Still, these questions deal with crucial issues that need to be addressed and, hopefully, resolved.
  1. What is my disease?You should find out as much as possible about your disease. What is it? How will it affect me? And very importantly, how will it cause my death? First, ask your physician. Additionally, many popular books are available in bookstores and libraries which can give you a basic sense of your disease process and disease terminology. National organizations, such as the American Cancer Society, and often local hospitals can provide brochures, video tapes, or even lay experts to help you and your family understand your particular disease. Ignorance is not bliss; the more you and your family know, the better able everyone will be able to cope with what is happening.
     
  2. Should I seek a second opinion about my disease and my condition?Seek a second opinion! A second opinion will relieve your mind and resolve doubts one way or another that a major mistake has not been made. More importantly, a second opinion will offer a slightly different perspective that may help everyone’s understanding. Don’t be embarrassed about asking for a second opinion or think that you will make your physician angry. Second opinions are perfectly acceptable, and many physicians are happy when their patients seek second opinions. The original diagnosis is usually confirmed, and you are then more prepared to follow prescribed treatments.
     
  3. What health professional do I especially trust?Search for and then trust in a single individual. This does not mean you should not listen to all health professionals and follow reasonable directions and advice. But focus on one individual as the final helper. This normally will be the specialist physician in charge of your case. However, you may know your family doctor better than you know your cancer specialist. If this is the case, your family doctor may be the one to choose. But, if you do, make certain that your family doctor knows that he or she is serving that role
    .
  4. Why am I going into the hospital?There are four basic reasons why a terminally ill person would be hospitalized, but not all four necessarily apply to every patient. They are: (1) to confirm the diagnosis and analyze how far the disease has progressed; (2) to provide treatment that can only be given in the hospital, (3) to treat a severe worsening of the disease; and (4) to treat the final phases of the disease, if this cannot be done at home or with hospice. You should know which applies to you so that you can understand why things are done to you and what benefits you can expect.
     
  5. What are the hospital rules about terminally ill patients?Hospitals and medical centers have written rules and procedures that outline in detail how the hospital will deal with terminally ill patients. These are not “treatment” rules. These protocols or guidelines, as they are called, deal with how to handle end-of-life issues, such as whether the patient (or the patient’s family speaking for the patient) wishes extraordinary “heroic” measures to be used to keep the patient alive. Hospitals are obligated, and very willing, to share these protocols or guidelines with patients and families. Consider getting a durable power of attorney in which you name one or two people to make decisions or choices on your behalf if you should be incompetent or incapable of making decisions yourself. Read the “Do Not Resuscitate” policies of the hospital. Death should be peaceful, and you should not ask for anything that gives you prolonged agony.

    You should be aware that nurses and other hospital staff may not know that you are terminally ill. This fact may not be written in your chart, which can lead to conflicts between families and hospital staff. The family may assume that everyone in the hospital shares their grief, and will not understand the workaday attitude of nurses, dietitians, or others. It is okay for the family to tell the hospital staff that you are dying since they may not know.
     
  6. What resources are available from the health care community?Most hospitals have many services available to patients and families to help with nonmedical aspects of your care. These include social services and psychological, financial, and religious counseling. For example, a visit, before hospitalization, to the hospital financial counselor by a family member to check on insurance and payment plans is a wise move. In the rush to admit a patient, important information may not get recorded. A 15 minute meeting with counselors can avoid stress and anger over incorrect bills. Similarly, meeting with the hospital social worker may be very helpful in arranging home care. Use these services!
     
  7. What can I do if it seems that nothing is being done or if I don’t understand why certain things are done to me?Hospitals, clinics, and doctors’ offices can be confusing places. You can begin to feel you have no control over what is being done to you, and you may wonder if anyone really understands your case. This is the time to call the health professional who is your primary contact - the one you decided you fully trust - your physician specialist or family physician. Ask this person to explain what is going on. Have him or her paged or even called at home if your situation is very upsetting. It is the physician’s responsibility to help you, and he or she will not be angry that you called.
     
  8. How will I and my family pay for my treatment?Financial professionals employed by hospitals understand billing and what may or may not be covered by Medicare, Medicaid, or private insurance. Consult them and be sure to ask every question to which you and your family need an answer. It is important that you and your family do not panic over billing. Ask for advice and help.
Sometimes the hardest part about dying is the effect it has on your family and friends. Helping them deal with your death helps you find peace and comfort. If you are not at peace with your death, ask the health professional you especially trust to help you find peace. That person will help or will get whatever help is needed. After all, it is the goal of all health professionals, to give you comfort and health during life and peace to you and your family at death.
Related Articles:Helping Yourself Live While You Are Dying What Does Someone Dying Need?

Wednesday, December 8, 2010

What you can do...

Be with them, do for them, pray with them!

Thursday, December 2, 2010

A few encouraging words to say to someone going through cancer treatments

As I have gone through this myself the greatest words or deeds were:

*  Do you want a neck rub?
*  Can I bring you something special to eat?
*  Can I help you with your housework?
*  Can I drive you to your next appointment?
*  I love you and will be here for you.
*  Offer to do something specific, don't just ask if there is anything you can do.  We always answer "no" trying to be strong or unable to think of anything at the moment. If you do offer, be sure to carry through!

*  Don't tell them it will be all right unless they ask!
*  One of the other things I found helpful was for someone to come over once a week and help me weed and water my flower gardens!

*  There was one dear lady who knew of my circumstances, that I had never met before, yet she would drop off flowers or homemade cards periodically on my doorstep.  I'll never forget how a complete stranger could be so thoughtful and kind.  That, I will remember forever.