To all of you who know someone who is fighting this dreadful disease, know someone who has passed on, or may even be fighting this battle yourself... I hope you find some comfort here at this site, whether it be an article, a link, or even a picture. My heart is with you, for I have lost my dear sister Janel who was only 42 at her passing October 26th, 2009. This young woman never drank alcohol or smoked a day in her life. She was a third degree brown belt in karate and only lived for three days following her diagnosis. I encourage everyone to support research and funding for this silent killer.

Monday, March 5, 2012

What do you say to someone who is dying?

Talking to someone who is dying can be very uncomfortable. It can be so uncomfortable people often avoid, or want to avoid, visiting or talking with a dying person. People often state they “just don’t know what to say.”

It is understandable we are at a loss for words around someone who is dying. We never wrote essays in school about talking to a dying person and dinner conversations don’t routinely cover this subject. It is especially difficult to find words when we are experiencing intense feelings of sadness and impending loss. We may only see their failing body, declining health, and vanishing spirit while losing sight of the fact a dying person is more than their death. Finding words in this painful situation necessitates a broader perspective than the moment we are in.

At any point in time a human being is a composite of their past, present and future.

Relating to people successfully includes referencing all three of these dimensions.

When we say “hello” to someone who is dying we need to be thinking about the person they were, the person they are, and the person they will become. When we ask “How are you?” we need to really mean it and not accept “fine” or “OK” as an answer. We need to say “No, I mean how are you really.” Then we need to listen and listen well, because talking with someone who is dying is as much about listening as it is about words.

We may not know much about the particulars a dying person shares such as diagnoses or tests or treatments. But we all know about pain, frustration, sadness, and loss. These feelings are not situation specific and we can say “I am so sorry you have to experience these things today.” Empathizing with someone who is dying is a powerful way to be with them. Even the dying person can only spend so much time with their decline and will need to move on.

You can say “I remember when things were different. Do you remember when we went fishing in that snowstorm?” or bring up some time in the past you were together. This can often be a comfortable time talking about your shared past and exchanging familiar remembrances that connect you in the world of memories. Talking about past experiences reminds everyone that the dying person’s life is more than what it is today.

When reminiscing is ending you can talk about tomorrow by asking “What will your tomorrow be like?” This question may take you into current events or it may take you into the final chapter of a life. When a dying person talks about “just waiting to go” you may squirm and say “I hate to hear you say that, my world will be different without you.” Tears and hugs and hand holding are meaningful because sharing emotions and touch are another powerful way to be with someone.

Ending a conversation or visit with a dying person can be hard. You can say “I have to go now, I have enjoyed talking with you, I am thinking about you.” You may be overwhelmed with lots of other thoughts and emotions, but know you have made a positive difference by spending time with someone and their past, present, and future. And when the dying person can no longer talk, you can still communicate with them by sitting quietly at their side in silence, remembering their life is so much more than this moment.


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Susan Pafford said...

Just thank you. My husband and I are about to travel across the country to visit his aunt who is very ill with pancreatic cancer. She was diagnosed in Sept 2013 and just told the family recently. We spoke to her and it was heartbreaking to hear her pain and how tired she is being in pain. I had ovarian and uterine cancer 8 1/2 years ago and survived. That was the last time I saw her. This visit will be extremely difficult and part of me feels guilty for surviving and knowing she will not. I had no idea what I am to say to her as I have never been in this position before. After reading this, I know...I have always been a care giver and I will be strong for her and just be there for her the way she needs.... to feel loved.

Thank you and I am terribly sorry about your sister.


Susan Pafford said...

Just thank you. I really had no idea and now when I see my husband's favorite aunt next week, I know what to say and what to do. I will give her all the love she needs and just be there if that's what she wants.
I was worried until I read your post. I truly needed this.

I am so terribly sorry about your sister...